The organisations listed below can provide reliable information, support and contacts with other affected by Silver Russell Syndrome
General Enquiries
United Kingdom
Child Growth Foundation,
21 Malvern Drive,
Sutton Coldfield,
West Midlands,
B76 1PZ
United Kingdom
0208 9120723
www.childgrowthfoundation.org
jenny.child@childgrowthfoundation.org
United States of America
MAGIC Foundation
6645 W. North Avenue
Oak Park,
IL 60302,
USA
(708) 383-0808
www.magicfoundation.org
rss@magicfoundation.org
Belgium
Nonjia Rosen
www.alice.be
nonjia.rosen@3b-fibreglass.com
France
Association Francaises des famillies ayant un enfant atteint du Syndrome Silver Russell (SSR) ou ne Petit pour l’Age Gestationneln (PAG) et leurs amis
30 rue Charles Peguy
49000 Anger
France
www.silver-russell.fr
afif.ssr.pag@gmail.com
www.facebook.com/silver.russell.9
Germany
Bundesverband Kleinwüchsige Menschen und ihre Familien,
Leinerstrasse 2
28199 Bremen
Germany
www.bkmf.de
https://www.facebook.com/BKMFeV
The contacts listed below are parents of children with Silver Russell Sydrome, or medical professionals, who are willing to be contacted.
Hungary
Agnes Hnisz
Andrea Luczay
hnisza@yahoo.fr
luczay.andrea@med.semmelweis-univ.hu
Italy
S. Russo
Sylvia Mariotti
s.russo@auxologico.it
Poland
Joanna Rychlik
Joanna.rychlik@tzmo.com.pl
Canada
Sophie Cazenave
Parent and Community manager, Regroupement québécois de familles ayant un enfant avec le syndrome de Russell-Silver ou né petit pour l’âge gestationnel et en attente de diagnostic]
russellsilverquebec@gmail.com
Holland
Jorien Mulder-van’t Riet
jorienvantriet@gmail.com
Denmark
Susanne Boonen
susanne@boonen.dk