Benedicte Perrotin-Lemaire

Who are we?

The Silver Russell Syndrome Global Alliance is an umbrella organization composed of parent-support organizations from around the world along with key medical specialists experienced in treating Silver Russell Syndrome. The Alliance’s primary mission is to contribute to the worldwide standardization of information on the clinical and molecular diagnosis, and treatment management guidelines, of SRS.

By networking parents and physicians throughout the world to patient-support organizations in their local geographic areas, up-to-date diagnostic and therapeutic strategies will become more readily available.

Recent Updates

Highlights and Summary of the International Consensus 4th April 2018

A brochure of the highlights and summary of “Dia...

Diagnosis and management of Russell-Silver Syndrome: First international concensus statement 9th September 2016

Following on from an international meeting of Russ...

The Silver Russell Syndrome Global Alliance Launches its new web site 24th August 2016

Please help us by publicising this web site, shari...

Terms of Use

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